One of the highlights of São Paulo International Film Festival 2024 is “A Different Man “, production starring Sebastian Stan (“Captain America”), 42, who plays a character with neurofibromatosis a rare genetic condition. The film also features the British actor and presenter Adam Pearson 39, who, unlike Sebastian, was actually born with the condition.
Known for the film “Under the Skin”, starring Scarlett Johansson, Pearson was born with neurofibromatosis, a group of genetic diseases that cause the growth of benign tumors in the nerves . He has the type 1 form of the condition, which can manifest anywhere on the body.
Neurofibromatosis type 1, the most common form of the condition is characterized by “café au lait” spots on the skin, which appear since childhood. They may also arise Lisch nodules in the iris of the eye, which do not affect vision.
In adulthood, many patients develop neurofibromas, benign tumors located on or under the skin, and can appear on nerves close to the spinal cord. Adam also has a twin brother Neil Pearson, who has the disease.
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In an interview with People magazine, the actor revealed that has undergone 39 surgeries to remove tumors that continue to form . “They grow slowly, so it’s a never-ending cycle,” he commented.
However, he does not see himself as a victim of this circumstance. “It’s easy to get stuck in thoughts like ‘it’s not fair’ or ‘why is life so cruel?’ But that doesn’t bring any solution “, said Pearson, who lost vision in one of his eyes due to the tumors.
“I know some people in the disability community say, ‘It’s not my job to educate you about disability.’ However, we are the experts on this subject. I believe that if I am not educating, I am being reckless and irresponsible “, Pearson told the publication, referring to his role as an ambassador for the condition.
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“A Different Man”
In “A Different Man”, we follow the story of Edward (Sebastian Stan), a man who, after undergoing facial reconstruction surgery he finds himself obsessed with an actor, Oswald (Pearson), who takes part in a play inspired by his previous life. The film’s cast also includes Renate Reinsve known for her performance in “The Worst Person in the World”.
The feature film premiered on Sundance Film Festival this year and was then presented at the Berlin International Film Festival, where Sebastian Stan received the Silver Bear for Best Actor for his performance in the film.
Node Rotten Tomatoes a website that compiles film and series reviews, “A Different Man” received 91% approval among critics . The platform’s consensus highlights that the work is “surreal and unsettling”, offering a “bold and provocative approach” to serious issues.
“A Different Man” does not yet have a release date on the Brazilian commercial circuit. The film, however, will be shown at the São 2024 International Film Festival.
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This content was originally published in Who is Adam Pearson, an actor with a rare and degenerative disease who stars in the film? on the CNN Brasil website.
Source: CNN Brasil
I’m Robert Neff, a professional writer and editor. I specialize in the entertainment section, providing up-to-date coverage on the latest developments in film, television and music. My work has been featured on World Stock Market and other prominent publications.
